Rare University
Additional Rare Disease Education


Rare University is dedicated to empowering rare disease patients, caregivers and advocates through advocacy resources and clinically vetted medical education. Launched as a partnership between Global Genes and PlatformQ Health, RareUniversity.com features live and on demand programs with rare disease experts covering everything from research updates and treatment protocols to reimbursement resources and drug development. Learn more.

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Drug Dev Toolkit

Support Groups: A RARE Advocate's Guide to Connection

Global Genes's RARE TOOLKITS™

Learn how to build a support group for your rare disease community, the types of groups - both on and off line - that are working for other communities, how to facilitate a group discussion, and how to market your group so people who need you can find you.

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Partners and Supporters

  • Global Genes
  • PlatformQ Health