WELCOME TO RARE UNIVERSITY
Rare University is dedicated to empowering rare disease patients, caregivers and advocates through advocacy resources and clinically vetted medical education. Launched as a partnership between Global Genes and PlatformQ Health, RareUniversity.com features live and on demand programs with rare disease experts covering everything from research updates and treatment protocols to reimbursement resources and drug development. Learn more.
Support Groups: A RARE Advocate's Guide to Connection
Global Genes's RARE TOOLKITS™
Learn how to build a support group for your rare disease community, the types of groups - both on and off line - that are working for other communities, how to facilitate a group discussion, and how to market your group so people who need you can find you.Access Toolkit