Rare University
Additional Rare Disease Education
2016 Summit

2016 RARE Patient Advocacy Summit
September 22nd and 23rd

Access Recorded Sessions Below

Whether you are a patient, caregiver, advocate or clinician, walk away with empowering insights and actionable next steps.

Last year’s two-day RARE Summit featured leading minds from across the rare disease landscape. RareUniversity live streamed over 70 hours of inspiring and educationally intensive sessions. If you missed it or would like to watch a session you didn't get to see, access ten select recordings below and be sure to join our mailing list to receive updates on future rare disease programs.

Recorded Sessions from the Global Genes 2016 RARE Summit

Game Changing Science, Technology and Clinical Care
Genetic Counselors: Under-Utilized Resource and Tool for Patient Advocates
Precision Medicine Initiative
Building Your Scientific Team
Keynote Presentation with Petra Kaufmann, M.D.
Effective Social Media Engagement for Your Rare Disease Community
The Natural History of Clinical Trials
How to Engage with Researchers and What Questions to Ask
Building An Engaged Patient Community
Transitioning Care: Pediatric to Adult Healthcare Providers

Global Genes Toolkits


Partners and Supporters

  • Global Genes
  • PlatformQ Health