Rare University
Additional Rare Disease Education

Patient's Role in Drug Discovery:
How to Engage with Researchers and What Questions to Ask

Presented by Margie Frazier, Ph.D. (Executive Director of Batten Disease Support and Research Association) and Gay Grossman (Parent Advocate ADCY5.org)

Recorded LIVE at the 2016 RARE Patient Advocacy Summit: September 23rd, 2016

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