Data DIY: Developing Collaborative Research Networks
Developing treatment for rare diseases is always a team effort. As an advocacy leader, you have an essential role to play in convening this team. In this module, you’ll meet Dr. David Fajgenbaum and learn about the 8-Step Collaborative Research Network he created to advance treatment for Castleman Disease.
Next, you’ll draft an action plan that will enable you to generate interest among clinicians and researchers, and grow and manage your scientific network. By the end of this module you will be able to; identify the 8-steps in the CDCN’s Collaborative Network Model, describe the process you will use to locate and connect to researchers, and create a plan for organizing and leading your research network.