Welcome to RARE University!

RARE University was inspired by Global Genes, a leading global non-profit RARE disease advocacy organization, and is dedicated to providing trusted and relevant education, training, tools, and resources you need to make an impact in the Rare disease community. Whether you are a patient, advocate, caregiver, researcher, physician, foundation, or organization, RARE University is for you!

All courses are free and designed with you in mind. From basic to complex, Rare University offers robust content on a variety of the most desired topics in rare disease. Whether you want to learn more about capacity building, family and genetics, cell and gene medicine, or how to advocate for the rare disease community, you’ve come to the right place.

Courses are designed to allow you to choose your own learning journey. From self-guided courses to courses led by our knowledgeable subject matter experts, start with whichever course interests you the most and learn at your own pace. Within our courses, you will find videos, worksheets, detailed explanations, activities, recommended templates, reports, and additional guidance. Each course is created to help you develop practical skills and to put the concepts you learn into use.

Find empowerment in education and be inspired by the Global Genes community. We welcome you and wish you a great learning experience as you explore Rare University!

-The Global Genes Team